UW Madison

Wednesday morning we had a regular check up with the pediatrician. He came in, sat down and didn't look good. Looking intently at his laptop said we needed to check a few more things out...... So more blood draws, a chest xray......waiting......waiting.... I peak out the door wondering if I can get her dressed. He tells me that it will just be a minute that he is making some phone calls......wait......

He comes in, sits down, scrolls on his laptop, which I beleive is a nerveous habit. He looks at me, and says, I don't know what to do. Her liver issn't functioning. Her levels are all off. I can leave and he will let me know where we were going to go. 2 hours later he calls to say, go home, pack a bag, and rush to the Children's Hospital. Hurry. They are waiting for you.........

7pm we pull into the parking ramp. They are waiting for us, name on the room already. As I walk down the hall to the desk, I start to loose it.......

We have been here for 4 days!!!!! I have been over everything....They draw the mazimum amount of blood at a time, to run every test they can think of. They don't know what's wrong.......

Thursday at 3pm we had a liver byopsy. Her liver is 4 times the normal size. The liver is destoying it's self. She is in liver failure. They sat me down and prepared me for liver transplant. Oh my God, I haven't even had my daughter home for 2 weeks and they are planning to cut her to pieces.........I should be home planting bulbs in the gardens, with her sitting in the grass. Instead I'm asking if liver faliure is fatal. The liver specialist replies, not always.......They don't know what's wrong or what's causing it......

As of this moment tonight......Bottom line....... It's not the major things we all think of. It's not HIV, it's not Hep A, B, C. They stopped talking about transplant. And now we pray and wait for results of tests to determine what it is......

Thank you for your prayers, God Is Good All The Time!!!!!